Scoliosis Support Groups

National Scoliosis Foundation, Inc.
(800) 673-6922  |  www.scoliosis.org  |  Facebook  |  nsf@scoliosis.org

The National Scoliosis Foundation (NSF) is a nonprofit organization that promotes public awareness and medical research about scoliosis. NSF provides education and support for patients and healthcare professionals through videos, books, brochures, local chapters, conferences, and postural screening training sessions. NSF can also help establish a scoliosis screening program for adolescents in your local schools. Assistance is available Monday through Thursday, 9:00 a.m. to 4:30 p.m. EST, by calling 800-NSF-MYBACK (800-673-6922).

Scoliosis Research Society
(414) 289-9107  |  www.srs.org

The Scoliosis Research Society (SRS) is a professional organization for health care professionals who treat scoliosis and serves as a de facto certification body for scoliosis surgeons. You should check with the SRS to verify that your preferred surgeon is a member; an updated listing of all SRS surgeons is posted on their website. The website also contains graphics and x-ray examples to help explain scoliosis, as well as a glossary of scoliosis terms.

Online Scoliosis Forums

Internet discussion groups can be helpful in getting advice and emotional support from others in your situation. Links to the best discussion groups are provided below, but please keep in mind three notes of caution:

  1. Advice you receive on the Internet is not necessarily sound medical advice and should not take the place of a consultation with a qualified orthopedist.
  2. In the discussion groups you will inevitably find stories of surgeries gone wrong or about people who had terrible surgical complications. Please understand that the people who participate most actively in these groups are usually doing so because they had problems with their treatments. In contrast, those who had successful outcomes have less motivation to participate. Don't be discouraged by the stories you encounter.
  3. Some people, unfortunately, seek to profit financially from those desperate to find an alternative to scoliosis surgery. These individuals frequently market their "miracle solutions" to these discussion groups, even though in many cases this is against the policy of the group. Be wary of claims that sound outlandish.
► National Scoliosis Foundation Forum—Hands down, the best online group overall.
► Yahoo Scoliosis-Medical—A good general forum.
► Yahoo Feisty Scolio Flatbackers—For revision surgery issues, specifically.